The Neoplasia Chronicles (cancer)

by admin on June 9, 2016

ne·o·pla·sia/ˌnēōˈplāZH(ē)ə/

 noun : The formation or presence of a new, abnormal growth of tissue.
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The Neoplasia chronicles are the personal stories of my journey with bladder cancer from the day i found something wrong until i’ll be back to my normal life, because i decided to write about this disease after my second day of chemotherapy on May 3nd 2016.

 Pierre Perpall JrPhoto 191september 2015

It was 2 am around december 18th 2015, I fell asleep on the couch in front of the tv downstaires. I had to go to the bathroom, so i got up and went for a good ol’ pee, now usually i have a hand on the wall to not fall coz my eyes are close and im tired, but for this one i just stared in a daze at the bowl, halfway through I heared “plop” in the water, I looked down and i saw a fairly big cloth of blood (WTF)!!!  I had to go to bed beside my wife not knowing what to say. I said nothing until the morning, and i didn’t sleep either.

Ups and Down

The month that followed was better than i expected, or so I thought. The first thing i did is to get a quick appointment with the local doctor,, (pee in a cup, blood test) then first good news that i didn’t have blood in my pee, so it could be kidney stones or some infection. He still gets me to see a specialist (Urologist) but there is about 3 weeks wait. Then after 2 weeks I receive a call from the doctors office and the lady on the phone says that the doctor received the result of my blood test and wants to see me in two days (uhhgg).  At that point I really don’t feel good (psychologically of course) I have all these scenarios in my head seeing the doctor telling me I have cancer and i’m going to die soon, i’m not joking , I’m really not positive inside for the next two days.

On my way to my appointment with my wife and my kids in the back asking questions, and I keep telling them daddy is just going for a quick check up. So I get into the office and the doctor says hi and never takes his eyes off the screen and he is serious as hell (I don’t like it). He finally looks at me and says “well Mr. Perpall your cholesterol is too high, you have to go on a diet and quit fast food for awhile”. “That’s it?  NO Freakin Problem”.  The doc tells me that i should go for a scan and few other test like Urologie and an Echo scan, but it takes forever to get an appointment.  Anyways im on my way home with a big smile.

The Clean up

The Month of January is like a new start for me, 2016 looks great, im on a diet, full of energy, i have a new Dj gig in old Montreal, everything is A-OK, or so I thought.

February 2016

bladder cancer"the story of Pierre Perpall jr

40 short days in heaven

January and February were really amazing, I managed to lose 18 pouds, no more belly, i’m making good money, i started back studying Forex trading and more seriously then ever, I’m full of energy. The future looks good. Or, so I thought.

I finally receive a call from Urology to set an appointment to check my bladder (Cystoscopy)

Overview of Cystoscopy

Cystoscopy, or cystourethroscopy, is a procedure usually performed by a urologist that allows the physician to see the inside of the lower urinary tract (urethra, prostate, bladder neck, and bladder).

YES THEY GO THROUGH YOUR PENIS, It’s uncomfortable but it doesn’t hurt.

What we saw was a couple of tumors so without waisting time the doctor set an appointment for my operation wich consist of operating through the penis and go directly and literally scratch the tumors away and send them for a (biopsy).

biopsy is a sample of tissue taken from the body in order to examine it more closely. A doctor should recommend a biopsy when an initial test suggests an area of tissue in the body isn’t normal. 

 

I got operated March 22nd 2016 , My 50th birthday was March 25 Nladder Cancer

LOLLLLLL Forgive me for the bird.

A lot of people complain about services in hospital and how they are being treated bad and all. For some reason unknown it doesn’t happen with me, i always smile, say hello and thank you to anyone who comes in my room to either take my temperature, pressure or clean my whatever i need cleaning, these people clean shit and piss all day long, their job is really difficult and stressful, if you treat them nice you will get the best service and attention. Trust me, it works.

 

 

 

The Wait

 

My post operation appointment with the doctor was set 3 weeks after i came out of hospital. Now of course everyone is wishing for the best and are very positive. FOR SOME UNKNOWN REASON EVERYONE BECOMES A SPECIALIST IN CANCER because after 10-12 days people ask me if I got news from the biopsy, I tell them no not yet, so they tell me it means im not infected because their uncle or friend had the same thing and if I don’t get news, well, it’s good news. But it doesn’t stop there, at least 6-8 people I know tells me the same thing about this disease. One person told me her mom received the results of her biopsy after 36 hours, they don’t wait,  when your tumors are malignant they tell you fast and if they are not, well nobody calls you,,,,,,Of course all those stories are feel good to me because  after 14 days no one called me so im like ‘YES” and I go about my business as usual.


 

The Bad News

cancer

April 14 2016,  I have a post op with a Dr. to see how my bladder is doing, and it’s doing well. I healed fast and everything is ok. So I tell the Doc about how i went through this almost painless and I was able to go back to my DJing 2 weeks after instead of 4 weeks which is pretty awsome for the wallet since entrepreneurs don’t get unemployment. I tell the Dr. that since I didn’t receive news from the biopsy all must be ok and the tumors were benign obviously and his answer is “Well that’s what we are going to check today”  I’m like “What do you mean??? “  The Doc is looking at a computer screen and tilt his head on the side with a humm sound then looks at me and says…  I DON’T HAVE GOOD NEWS” and then he saysYour bladder is completely infected with an agressive cancer, you will start chemotherapy within the next 2 weeks and then we will have to remove your bladder” Ever had that feeling where sweat comes out of your forehead in a split second and everything dissappear around you?  Believe me it’s scary, and from that moment on all the doctor was saying sounded like he was in another room, my thoughts were trying to process the news but it was completely numb.    I didn’t want that moment to exist, it was just a big blur of “WTF happen?”

The doc sends me to get a blood test for whatever reaon, but the problem is that I went there all alone because i didn’t think I was receiving bad news. So as I’m waiting in a pool of people (aprox. 125 ) to get a stupid blood test, and I have to figure out how to tell my wife who’s at work and has no clue what’s going on.  And… MY KIDS OMG, HOW DO YOU TELL AN 8 AND 10 YEARS OLD????        Fuck me! 🙁


CHEMOTHERAPY

Chemotherapy (also called chemo) is a type of cancer treatment that uses drugs to destroy cancer cells.

I’m scared shitless to start chemo, i hear stories and even worst, I have good intention friends that keep posting stuff on Facebook about tons of natural cures for cancer and green juices and stories of people starting to eat bio and all. Here is my problem, Facebook is the most twisted newsfeed of the universe, one day a superstar is dead then it’s a hoax, one day some company gives away $100 of grocery if you like and share, another hoax. The other problem is that my cancer is very agressive and can spread fast, now, do I want to go and gamble on green juice and Aloe Vera plant? Years of research and billions of dollars have been invested in finding ways to save peoples lives. What am I suppose to do here?


 

neoplasia

This is not blood, it’s an intravenous medication call DOXORUBICIN (Adriamycin) a very strong anti-tumor used in most treatment. I have 4 different medication like that administered in a 2 day session.

Day no1 is a 30 min. treatment

Day no2 is a 6 hour treatment

Then we wait for 2 weeks to repeat for a 6 week treatment.

The name of my treatment is call  MVAC

MVAC is the name of a chemotherapy combination made up of the following drugs. M – Methotrexate. V – Vinblastine. A – Doxorubicin (Adriamycin) C – Cisplatin.

 

Side effetcs? Hell yeah

First of all it’s very important to understand that side effects vary from person to person because each of us are different and our body react also differently to the drugs. I will list the side effects in general and then tell you about mine and you also need to know that they (oncologist & pharmacist) are doing anything they can so you go through your treatment as easy as possible to keep a way of life that is decent.

General side effects of chemotherapy

  • Fatigue. Fatigue is feeling tired or exhausted almost all the time. …
  • Pain. Chemotherapy sometimes causes pain. …
  • Mouth and throat sores. …
  • Diarrhea. …
  • Nausea and vomiting. …
  • Constipation. …
  • Blood disorders. …
  • Nervous system effects.
  • Acid reflux and Hickups due to pills against vomiting
  • Hairloss

“I only felt bad for 4 days after the 1st treatment, my body actually adjusted well and the pharmacist in oncology prescribed me a couple of pills that did the job.”

 

My treatments

thumbnail_IMG_3871

I haven’t slept for a minute on the sunday before my first treatment, nervous, anxious, I’m litarally petrified. I’m suppose to have a hearthy breakfast, but I gulp a toast and a coffee. The treatment is set to be in 2 parts every two weeks. Day one is about an hour and day two is 6 hours. All that to say that day one went very easy, I didn’t feel nothing but I was completely drained an exausted of all the anxiety that brouhght me to this day that when I got home, I went to bed until the next day for the big one. And yes, it is a big one, Pills, saline, 3 different type of chemo solution, and then you’re a Zombie for a week. My body and my mind were not ready for this, no appetite, tired, no motivation at all, and I mean it, i was too tired to fall asleep, completely freaked me out. On the 5th day I started feeling better, I ate 2 breakfast, 2 lunches and a big supper, man I love comfort food. After meeting with the the pharmacist, they gave me a couple of prescriptions that made my other treatments so much better, I even gained weight, and about the hair, well I have been shaving for the past 5 years so it’s not like we can see a change, for me the only difference is that my beard didn’t grow in the past 3 weeks lol.

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The Big Op

coming soon… set for July 4th 2016

PS: The main reason I am taking donations is because as a DJ entrepreneur , i will not received compensation for my 8-12 weeks of my convalescence,,, I already had to cancel a huge contract with the Montreal Casino because of chemotherapy,,, Thanks for your help.

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Do what you love in life

by admin on May 30, 2016

Have you ever wondered if you would be happier with less money doing what you love? If you did you should do what you love in life before you regret it.

 

Success is not the key to happiness. Happiness is the key to success. If you love what you are doing, you will be successful. –Albert Schweitzer (1875 – 1965)

We are busier than we have ever been, working long hours and feeling under more and more pressure. How do you spend your days? For many people work and pleasure are seen as separate, with work being a chore that has to be done to pay the bills. It doesnít always have to be like that. Although we donít have to love everything we do, we do need to gain some enjoyment from most of what we do. Take a moment to see if it is time to start afresh and do something you love, something that adds the pleasure factor back into your working life.

 

Think about what matters to you and why you do the things you do. For each person that means something different. What aspects of a job are important to you? List them. Think about your dream job. Does it motivate and inspire you? If not, think again. It has to mean something to you, otherwise you will not be prepared to put in the effort to achieve what you want. Ask: What am I prepared to give up to make this happen? What would I love to try? What options do I have? What are my talents, skills and qualities? How can I utilise them in my ideal job? How can you take an idea and turn it into reality? Get creative and think through how you could make money doing what you enjoy. 

Starting anew to do what you love in life requires courage, confidence and commitment.

Hold on to your sense of purpose. Believe in yourself. Ignore the critics, for there are bound to be some, and face your fears (there will many of those too!). Ask for help from those people who can assist you and get supporters to keep you motivated. Research things that interest you and, if necessary, go back to basics and learn new skills. Develop a clear vision of where you would like to be in 10 yearsí time and why. Write it down. Be specific. This will provide you with something to focus on. Think creatively. This may not happen all of a sudden, but if you work at it gradually, day by day, it can happen. 

do what you love in life

And if starting something new is not for you, how can you love the job you already have? You can’t always control your situation, but you can always choose how you react to it. Your attitude colours how you face every day and has an influence on the people around you. Choose to be positive. Are there areas of your job that you can improve on? Who can you discuss this with? Is a change to a new role in the same company an option? Examine the possibilities. Your job does not define you, but how you do it does.

And why bother? Doing what you love gives you a good reason to get up every morning. Your life will be challenging, certainly, exciting, definitely. Doing things you enjoy which give you personal fulfilment and satisfaction has been shown to contribute to good health and longevity. Don’t wait for perfect circumstances to start. Begin now!

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