The Neoplasia Chronicles (cancer)

by admin on June 9, 2016

ne·o·pla·sia/ˌnēōˈplāZH(ē)ə/

 noun : The formation or presence of a new, abnormal growth of tissue.
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The Neoplasia chronicles are the personal stories of my journey with bladder cancer from the day i found something wrong until i’ll be back to my normal life, because i decided to write about this disease after my second day of chemotherapy on May 3nd 2016.

 Pierre Perpall JrPhoto 191september 2015

It was 2 am around december 18th 2015, I fell asleep on the couch in front of the tv downstaires. I had to go to the bathroom, so i got up and went for a good ol’ pee, now usually i have a hand on the wall to not fall coz my eyes are close and im tired, but for this one i just stared in a daze at the bowl, halfway through I heared “plop” in the water, I looked down and i saw a fairly big cloth of blood (WTF)!!!  I had to go to bed beside my wife not knowing what to say. I said nothing until the morning, and i didn’t sleep either.

Ups and Down

The month that followed was better than i expected, or so I thought. The first thing i did is to get a quick appointment with the local doctor,, (pee in a cup, blood test) then first good news that i didn’t have blood in my pee, so it could be kidney stones or some infection. He still gets me to see a specialist (Urologist) but there is about 3 weeks wait. Then after 2 weeks I receive a call from the doctors office and the lady on the phone says that the doctor received the result of my blood test and wants to see me in two days (uhhgg).  At that point I really don’t feel good (psychologically of course) I have all these scenarios in my head seeing the doctor telling me I have cancer and i’m going to die soon, i’m not joking , I’m really not positive inside for the next two days.

On my way to my appointment with my wife and my kids in the back asking questions, and I keep telling them daddy is just going for a quick check up. So I get into the office and the doctor says hi and never takes his eyes off the screen and he is serious as hell (I don’t like it). He finally looks at me and says “well Mr. Perpall your cholesterol is too high, you have to go on a diet and quit fast food for awhile”. “That’s it?  NO Freakin Problem”.  The doc tells me that i should go for a scan and few other test like Urologie and an Echo scan, but it takes forever to get an appointment.  Anyways im on my way home with a big smile.

The Clean up

The Month of January is like a new start for me, 2016 looks great, im on a diet, full of energy, i have a new Dj gig in old Montreal, everything is A-OK, or so I thought.

February 2016

bladder cancer"the story of Pierre Perpall jr

40 short days in heaven

January and February were really amazing, I managed to lose 18 pouds, no more belly, i’m making good money, i started back studying Forex trading and more seriously then ever, I’m full of energy. The future looks good. Or, so I thought.

I finally receive a call from Urology to set an appointment to check my bladder (Cystoscopy)

Overview of Cystoscopy

Cystoscopy, or cystourethroscopy, is a procedure usually performed by a urologist that allows the physician to see the inside of the lower urinary tract (urethra, prostate, bladder neck, and bladder).

YES THEY GO THROUGH YOUR PENIS, It’s uncomfortable but it doesn’t hurt.

What we saw was a couple of tumors so without waisting time the doctor set an appointment for my operation wich consist of operating through the penis and go directly and literally scratch the tumors away and send them for a (biopsy).

biopsy is a sample of tissue taken from the body in order to examine it more closely. A doctor should recommend a biopsy when an initial test suggests an area of tissue in the body isn’t normal. 

 

I got operated March 22nd 2016 , My 50th birthday was March 25 Nladder Cancer

LOLLLLLL Forgive me for the bird.

A lot of people complain about services in hospital and how they are being treated bad and all. For some reason unknown it doesn’t happen with me, i always smile, say hello and thank you to anyone who comes in my room to either take my temperature, pressure or clean my whatever i need cleaning, these people clean shit and piss all day long, their job is really difficult and stressful, if you treat them nice you will get the best service and attention. Trust me, it works.

 

 

 

The Wait

 

My post operation appointment with the doctor was set 3 weeks after i came out of hospital. Now of course everyone is wishing for the best and are very positive. FOR SOME UNKNOWN REASON EVERYONE BECOMES A SPECIALIST IN CANCER because after 10-12 days people ask me if I got news from the biopsy, I tell them no not yet, so they tell me it means im not infected because their uncle or friend had the same thing and if I don’t get news, well, it’s good news. But it doesn’t stop there, at least 6-8 people I know tells me the same thing about this disease. One person told me her mom received the results of her biopsy after 36 hours, they don’t wait,  when your tumors are malignant they tell you fast and if they are not, well nobody calls you,,,,,,Of course all those stories are feel good to me because  after 14 days no one called me so im like ‘YES” and I go about my business as usual.


 

The Bad News

cancer

April 14 2016,  I have a post op with a Dr. to see how my bladder is doing, and it’s doing well. I healed fast and everything is ok. So I tell the Doc about how i went through this almost painless and I was able to go back to my DJing 2 weeks after instead of 4 weeks which is pretty awsome for the wallet since entrepreneurs don’t get unemployment. I tell the Dr. that since I didn’t receive news from the biopsy all must be ok and the tumors were benign obviously and his answer is “Well that’s what we are going to check today”  I’m like “What do you mean??? “  The Doc is looking at a computer screen and tilt his head on the side with a humm sound then looks at me and says…  I DON’T HAVE GOOD NEWS” and then he saysYour bladder is completely infected with an agressive cancer, you will start chemotherapy within the next 2 weeks and then we will have to remove your bladder” Ever had that feeling where sweat comes out of your forehead in a split second and everything dissappear around you?  Believe me it’s scary, and from that moment on all the doctor was saying sounded like he was in another room, my thoughts were trying to process the news but it was completely numb.    I didn’t want that moment to exist, it was just a big blur of “WTF happen?”

The doc sends me to get a blood test for whatever reaon, but the problem is that I went there all alone because i didn’t think I was receiving bad news. So as I’m waiting in a pool of people (aprox. 125 ) to get a stupid blood test, and I have to figure out how to tell my wife who’s at work and has no clue what’s going on.  And… MY KIDS OMG, HOW DO YOU TELL AN 8 AND 10 YEARS OLD????        Fuck me! 🙁


CHEMOTHERAPY

Chemotherapy (also called chemo) is a type of cancer treatment that uses drugs to destroy cancer cells.

I’m scared shitless to start chemo, i hear stories and even worst, I have good intention friends that keep posting stuff on Facebook about tons of natural cures for cancer and green juices and stories of people starting to eat bio and all. Here is my problem, Facebook is the most twisted newsfeed of the universe, one day a superstar is dead then it’s a hoax, one day some company gives away $100 of grocery if you like and share, another hoax. The other problem is that my cancer is very agressive and can spread fast, now, do I want to go and gamble on green juice and Aloe Vera plant? Years of research and billions of dollars have been invested in finding ways to save peoples lives. What am I suppose to do here?


 

neoplasia

This is not blood, it’s an intravenous medication call DOXORUBICIN (Adriamycin) a very strong anti-tumor used in most treatment. I have 4 different medication like that administered in a 2 day session.

Day no1 is a 30 min. treatment

Day no2 is a 6 hour treatment

Then we wait for 2 weeks to repeat for a 6 week treatment.

The name of my treatment is call  MVAC

MVAC is the name of a chemotherapy combination made up of the following drugs. M – Methotrexate. V – Vinblastine. A – Doxorubicin (Adriamycin) C – Cisplatin.

 

Side effetcs? Hell yeah

First of all it’s very important to understand that side effects vary from person to person because each of us are different and our body react also differently to the drugs. I will list the side effects in general and then tell you about mine and you also need to know that they (oncologist & pharmacist) are doing anything they can so you go through your treatment as easy as possible to keep a way of life that is decent.

General side effects of chemotherapy

  • Fatigue. Fatigue is feeling tired or exhausted almost all the time. …
  • Pain. Chemotherapy sometimes causes pain. …
  • Mouth and throat sores. …
  • Diarrhea. …
  • Nausea and vomiting. …
  • Constipation. …
  • Blood disorders. …
  • Nervous system effects.
  • Acid reflux and Hickups due to pills against vomiting
  • Hairloss

“I only felt bad for 4 days after the 1st treatment, my body actually adjusted well and the pharmacist in oncology prescribed me a couple of pills that did the job.”

 

My treatments

thumbnail_IMG_3871

I haven’t slept for a minute on the sunday before my first treatment, nervous, anxious, I’m litarally petrified. I’m suppose to have a hearthy breakfast, but I gulp a toast and a coffee. The treatment is set to be in 2 parts every two weeks. Day one is about an hour and day two is 6 hours. All that to say that day one went very easy, I didn’t feel nothing but I was completely drained an exausted of all the anxiety that brouhght me to this day that when I got home, I went to bed until the next day for the big one. And yes, it is a big one, Pills, saline, 3 different type of chemo solution, and then you’re a Zombie for a week. My body and my mind were not ready for this, no appetite, tired, no motivation at all, and I mean it, i was too tired to fall asleep, completely freaked me out. On the 5th day I started feeling better, I ate 2 breakfast, 2 lunches and a big supper, man I love comfort food. After meeting with the the pharmacist, they gave me a couple of prescriptions that made my other treatments so much better, I even gained weight, and about the hair, well I have been shaving for the past 5 years so it’s not like we can see a change, for me the only difference is that my beard didn’t grow in the past 3 weeks lol.

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The Big Op

coming soon… set for July 4th 2016

PS: The main reason I am taking donations is because as a DJ entrepreneur , i will not received compensation for my 8-12 weeks of my convalescence,,, I already had to cancel a huge contract with the Montreal Casino because of chemotherapy,,, Thanks for your help.

{ 10 comments… read them below or add one }

Melanie Cloutier June 21, 2016 at 8:29 am

Wish you the best. Fuck cancer, kick ass like you always do!

Strenght and love on your way.

Reply

Cathy Paris June 21, 2016 at 9:42 am

Qui perd la santé perd beaucoup / Qui perd un ami perd encore plus / Mais celui qui perd le courage perd tout.
Courage mon Pierre , et je te souhaite bon rétablissement.
Cathy Paris xoxo💜

Reply

danielle marceau June 21, 2016 at 9:47 am

Pierre je t’aime

Comment te dire … je viens de te lire et j’ai de la difficulté à voir le clavier , j’ai les yeux dans l’eau …
Ca fait des siècles que je voulais communiquer avec toi mais j’étais dans un état de détresse émotionnelle depuis
qu’on c’est parlé la derniere fois donc quelques années mais voilà je suis revenue à la joie de vivre d’entendre les oiseaux chantés et d’être utile autour de moi . Puis je t’ai fait une demande d’invitation sur face. Je ne lis pas beaucoup sur face et je te savais DJ maintenant et j’étais full contente que tu y sois arrivé ” le succès ” enfin . Je connais ton parcourt ,,
Heureusement pour moi je viens de te lire one shut alors j’ai appris du même coup que les traitements fonctionnent et que tu seras de retour en juillet
OMG je suis vraiment boulversé de ce que tu as vécu
et heureuse aussi …
A mon chère ami et sa charmante femme et adorable enfant un gros “callin ”
Si tu as le temps mais tu as des tas personnes à communiquer … tel moi
Danielle Marceau 514-512 2225

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Sylvie Hering June 21, 2016 at 10:20 am

Yes CANCER sucks !!! BEAT the hell of it !!! YOU ARE LOVED AND YOU WILL BE OK !!!

FROM MOMMA 🙂

XOXOX

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Lorraine and Alan June 21, 2016 at 10:22 am

Pierre, this sucks; it really really sucks. Alan and I are sending you strength, courage, and resilience. There is a warrior inside of you. He’s got your back.

Reply

Christine Lemay June 21, 2016 at 12:00 pm

Courage Pierre! Je te souhaite ce qu’il y a de mieux pour vaincre ce foutu cancer! Prends soin de toi! Xxx

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Daniel Kraus June 21, 2016 at 3:00 pm

Bon Courage, Pierre!

The same rhythm you’ve lived your life by will carry you forward through this as well. Much Love and many thoughts your way -Dan

Reply

Sonja B. June 21, 2016 at 5:01 pm

Pierre dahlin’
It’s really hard to understand what the Universe has in store for us. Bloody Hell that this uninvited critter just entered into your body and is hosting itself as its “Castle”, in your Castle. You are a warrior and have inspired many with your passion with your love for music and tenacious ability to “Shapeshift” your into many roles and opportunities. Just have to say that you will not be loosing your hair as many mourn that, as I would if I were in your position ;). Continue being charismatic, ambitious and most of all be faithful to your inner warrior to reclaim your CASTLE!!!! WE NEED YOUR ENERGY in this world; most of all your children and Laurie are there for you and they love you XXXXOOOO

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Daniel Mistiva June 21, 2016 at 6:15 pm

Bon courage mon ami Pierre. Tres touchant ton témoignage . Je te souhaite la santé et la force de faire face à toutes ces difficultés …

Reply

Carl Guerard June 23, 2016 at 7:39 am

Salut Pierre,

J’ai tombé royalement sur le cul lorsque j’ai appris la nouvelle ce matin et je me suis tout de suite rappeler les early nights du Jello quand on trippait sur la deep. Tu m’as inspirer à recommencer a mixer et produire de la musique et j’en suis très reconnaissant. On s’est toujours dit qu’on était pour jammer ensemble un jour et je sais qu’on va le faire!

Bon courage mon Pierre et je t’envoi tout mon amour, tu es un gagnant!

Carl

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